Thank you for taking the time to compile and share this important information about ILC. We definitely feel like our subtype does not get the focus that it deserves.
Thank you for writing this piece on ILC. I was diagnosed with ILC in 2001. I was also fortunate enough to be treated at the Royal Marsden where ILC was recognised. My oncologist told me it was a sneaky cancer that avoided detection for so long because it grows in lines ie not a lump. On diagnosis via US my tumour measured 5.5cm. I had an MRI using a powerful scanner and that detected cancer up to 8cm from top to bottom. My tumour looked like a multi legged spider. I was placed on a NEO-RT trial which involved giving me RT first followed by 5 months of tamoxifen. This reduced the tumour by 40% cellularity. I then had surgery to remove the tumour. Given the size of the tumour I am very aware of my risk of secondary.
I am so interested to hear from you that the medical profession know which mutations make ILC more likely to spread/give poorer outcomes. I would love to hear that some fabulous research team is choosing to focus their time on how to tackle these mutations and improve outcomes.
Wow. You are a Wow for taking your time and to describe this to us. I am interested to know if there are any medicines that work for HER2 negative? Also, did I understand correctly that cDNA has to be completed at the two year mark? I thought that I read this in Dr.
Moabbi's research? Thank you so much for all that you are doing.
Wow. You are a Wow for taking your time and to describe this to us. I am interested to know if there are any medicines that work for HER2 negative? Also, did I understand correctly that ctDNA has to be completed at the two year mark? I thought that I read this in Dr. Moabbi’s research? Thank you so much for all that you do!
Thank you for sharing this in a manner accessible to patients and other individuals who might zone out with more academic/scientific wording. You really do a great deal for education beyond your work with your patients. :)
Great piece. 23+ years ago I was diagnosed with breast. I found it on my own with a nipple discharge regular mammograms were clean. But I had extremely dense breast tissue. Five surgeries later, including reconstruction, I was diagnosed with DCIS and LCIS plus a 5mm I invasive tumor. No chemo/radiation and 5 years of Arimidex. But I thought I had failed myself. My breast cancer surgeon said it usually takes about 5 years for it to develop and I was lucky to find it. Please advocate for better testing/screening especially for women like me with dense breast tissue
Curious about endocrine therapy and ILC. Would love up to date information on Tamoxifen alone/in conjunction with OS/and OS with AI in pre-menopausal ILC patients. I hear lots of differing opinions on this as it related to ILC. Thank you for highlighting ILC!
Thank you for taking the time to compile and share this important information about ILC. We definitely feel like our subtype does not get the focus that it deserves.
Thank you for writing this piece on ILC. I was diagnosed with ILC in 2001. I was also fortunate enough to be treated at the Royal Marsden where ILC was recognised. My oncologist told me it was a sneaky cancer that avoided detection for so long because it grows in lines ie not a lump. On diagnosis via US my tumour measured 5.5cm. I had an MRI using a powerful scanner and that detected cancer up to 8cm from top to bottom. My tumour looked like a multi legged spider. I was placed on a NEO-RT trial which involved giving me RT first followed by 5 months of tamoxifen. This reduced the tumour by 40% cellularity. I then had surgery to remove the tumour. Given the size of the tumour I am very aware of my risk of secondary.
I am so interested to hear from you that the medical profession know which mutations make ILC more likely to spread/give poorer outcomes. I would love to hear that some fabulous research team is choosing to focus their time on how to tackle these mutations and improve outcomes.
Thank you very much for compiling and sharing this information. As a IIB ILC survivor, I plan to discuss these findings with my oncologist at our
next appointment.
Wow. You are a Wow for taking your time and to describe this to us. I am interested to know if there are any medicines that work for HER2 negative? Also, did I understand correctly that cDNA has to be completed at the two year mark? I thought that I read this in Dr.
Moabbi's research? Thank you so much for all that you are doing.
Wow. You are a Wow for taking your time and to describe this to us. I am interested to know if there are any medicines that work for HER2 negative? Also, did I understand correctly that ctDNA has to be completed at the two year mark? I thought that I read this in Dr. Moabbi’s research? Thank you so much for all that you do!
Thank you for sharing this in a manner accessible to patients and other individuals who might zone out with more academic/scientific wording. You really do a great deal for education beyond your work with your patients. :)
Great piece. 23+ years ago I was diagnosed with breast. I found it on my own with a nipple discharge regular mammograms were clean. But I had extremely dense breast tissue. Five surgeries later, including reconstruction, I was diagnosed with DCIS and LCIS plus a 5mm I invasive tumor. No chemo/radiation and 5 years of Arimidex. But I thought I had failed myself. My breast cancer surgeon said it usually takes about 5 years for it to develop and I was lucky to find it. Please advocate for better testing/screening especially for women like me with dense breast tissue
Curious about endocrine therapy and ILC. Would love up to date information on Tamoxifen alone/in conjunction with OS/and OS with AI in pre-menopausal ILC patients. I hear lots of differing opinions on this as it related to ILC. Thank you for highlighting ILC!